{"status":"OK","data":{"id":422705,"identifier":"XOAUAR","persistentUrl":"https://doi.org/10.34894/XOAUAR","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2024-11-18","storageIdentifier":"surf://10.34894/XOAUAR","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9999,"datasetType":"dataset","locks":[],"latestVersion":{"id":28032,"datasetId":422705,"datasetPersistentId":"doi:10.34894/XOAUAR","datasetType":"dataset","storageIdentifier":"surf://10.34894/XOAUAR","versionNumber":1,"internalVersionNumber":10,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2024-11-18T13:08:19Z","releaseTime":"2024-11-18T13:08:19Z","createTime":"2024-05-17T13:49:12Z","publicationDate":"2024-11-18","citationDate":"2024-11-18","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9999,"license":{"name":"CC0-1.0","uri":"http://creativecommons.org/publicdomain/zero/1.0","iconUri":"https://licensebuttons.net/p/zero/1.0/88x31.png","rightsIdentifier":"CC0-1.0","rightsIdentifierScheme":"SPDX","schemeUri":"https://spdx.org/licenses/","languageCode":"en"},"fileAccessRequest":true,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Pooled MDS-ABI data collected at the Brain Injury Centre Limburg (EHL)"},{"typeName":"subtitle","multiple":false,"typeClass":"primitive","value":"MDS-ABI data collected in EHL studies"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Domensino, Fleur"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"maastrichtuniversity.nl"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Caroline van Heugten"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"maastrichtuniversity.nl"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"All data that were collected with the MDS-ABI as part of studies among persons with brain injury, executed by the Limburg Brain Injury Center (EHL) up until the date of publication."},"dsDescriptionDate":{"typeName":"dsDescriptionDate","multiple":false,"typeClass":"primitive","value":"2024-05-17"}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Social Sciences"]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Domensino, A. F., van Haastregt, J. C., Winkens, I., van Bennekom, C. A., & van Heugten, C. M. (2020). Feasibility of a minimal dataset for adults with acquired brain injury in Dutch healthcare practice. PLoS one, 15(6), e0235085."},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"10.1371/journal.pone.0235085"}},{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Domensino, A. F., Winkens, I., van Haastregt, J. C., van Bennekom, C. A., & van Heugten, C. M. (2024). A cross-sectional comparison of patient characteristics across healthcare settings using the minimal dataset for adults with acquired brain injury (MDS-ABI). Neuropsychological Rehabilitation, 34(1), 1-22."},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"https://doi.org/10.1080/09602011.2022.2149559"}},{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Domensino, A. F., Tas, J., Donners, B., Kooyman, J., van der Horst, I. C., Haeren, R., ... & van Heugten, C. (2024). Long-Term Follow-Up of Critically Ill Patients With Traumatic Brain Injury: From Intensive Care Parameters to Patient and Caregiver-Reported Outcome. Journal of Neurotrauma, 41(1-2), 123-134."},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"https://doi.org/10.1089/neu.2022.0474"}}]},{"typeName":"notesText","multiple":false,"typeClass":"primitive","value":"Data with study code F: data from feasibility study of the MDS-ABI (https://doi.org/10.1371/journal.pone.0235085) <br>\n<br>\nSampling setting: healthcare institutions for patients with ABI. <br>\nInclusion criteria: adults with medically confirmed ABI who were capable of providing informed consent. <br>\nExclusion criteria: Progressive neurological conditions such as Parkinson's or Alzheimer's disease. <br>\nSample size: 50 <br>\nAdministered parts: <br>\nPart A: administered without screening question for comorbidity (unavailable) <br>\nPart B: administered <br>\nPart C: not administered (unavailable at the time) <br>\nPart D: not administered (unavailable at the time) <br>\n<br>\nData with study code D: cross-sectional study into characteristics of patients with ABI in The Netherlands (https://doi.org/10.1080/09602011.2022.2149559) <br>\n<br>\nSampling setting: community and healthcare institutions for patients with ABI. <br>\nInclusion criteria: adults with medically confirmed ABI who were capable of providing informed consent. <br>\nExclusion criteria: Progressive neurological conditions such as Parkinson's or Alzheimer's disease. <br>\nSample size: 73 <br>\nAdministered parts: <br>\nPart A: administered without screening question for comorbidity (unavailable) <br>\nPart B: administered <br>\nPart C: administered when possible (caregiver present or healthcare professional who knew the patient well) <br>\nPart D: administered when possible (caregiver present) <br>\n<br>\nData with study code sTBI: long-term follow-up study into critically ill TBI patients (https://doi.org/10.1089/neu.2022.0474).\n<br>\nSampling setting: community and residential institutions for patients with ABI. <br>\nInclusion criteria: TBI patients were eligible for participation if they had been admitted to the ICU of Maastricht University Medical Center+ (MUMC+), an academic teaching hospital and neurosurgical referral center, between 6 months and 5 years prior to the screening date. <br>\nExclusion criteria: Progressive neurological conditions such as Parkinson's or Alzheimer's disease. <br>\nSample size: 52 <br>\nAdministered parts: <br>\nPart A: administered without screening question for comorbidity (unavailable) <br>\nPart B: administered <br>\nPart C: administered when possible (caregiver present or healthcare professional who knew the patient well) <br>\nPart D: administered when possible (caregiver present) <br>"},{"typeName":"depositor","multiple":false,"typeClass":"primitive","value":"Domensino, Fleur"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2024-05-17"}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/XOAUAR"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"1.0"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:ee62bd5c-569c-4ac1-a292-4755755b5288"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-e986ed48-bd47-44c9-bcab-f00960569273"}]}},"files":[{"label":"MDS_ABI_pooled_dataset_EHL_anonymised.sav","restricted":false,"version":1,"datasetVersionId":28032,"dataFile":{"id":422706,"persistentId":"","filename":"MDS_ABI_pooled_dataset_EHL_anonymised.sav","contentType":"application/x-spss-sav","friendlyType":"SPSS Binary","filesize":80961,"storageIdentifier":"surf://store:18f86d01594-53d0ac4fe85a","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"b3cf126b0ce8fcef01d2a87fc73de62bad65c5e7"},"tabularData":false,"creationDate":"2024-05-17","publicationDate":"2024-11-18","lastUpdateTime":"2024-11-18T13:08:19Z","fileAccessRequest":true}}]}}}