{"status":"OK","data":{"id":48867,"identifier":"RXAROZ","persistentUrl":"https://doi.org/10.34894/RXAROZ","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2021-02-14","storageIdentifier":"surf://10.34894/RXAROZ","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9998,"datasetType":"dataset","locks":[],"latestVersion":{"id":3444,"datasetId":48867,"datasetPersistentId":"doi:10.34894/RXAROZ","datasetType":"dataset","storageIdentifier":"surf://10.34894/RXAROZ","versionNumber":1,"internalVersionNumber":17,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2021-02-14T17:59:03Z","releaseTime":"2021-02-14T17:59:03Z","createTime":"2021-02-11T08:27:05Z","publicationDate":"2021-02-14","citationDate":"2021-02-14","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9998,"license":{"name":"CC0-1.0","uri":"http://creativecommons.org/publicdomain/zero/1.0","iconUri":"https://licensebuttons.net/p/zero/1.0/88x31.png","rightsIdentifier":"CC0-1.0","rightsIdentifierScheme":"SPDX","schemeUri":"https://spdx.org/licenses/","languageCode":"en"},"fileAccessRequest":false,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Central sensitization, illness perception and obesity should be considered when interpreting disease activity in axial spondyloarthritis"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Kieskamp, Stan"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Centre Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"https://orcid.org/0000-0002-5511-3761"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Paap, Davy"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Centre Groningen"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Carbo, Marlies"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Centre Groningen"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Wink, Freke"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Medical Centre Leeuwarden"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Bos, Reinhard"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Medical Centre Leeuwarden"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Bootsma, Hendrika"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Centre Groningen"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Arends, Suzanne"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Centre Groningen"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Spoorenberg, Anneke"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Centre Groningen"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Research Data Office"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"This dataset contains clinical data of patients enrolled in the Groningen Leeuwarden Axial Spondyloarthritis (GLAS) cohort, a two-centre prospective observational cohort of patients >18 years of age who have been diagnosed with axial spondyloarthritis. All GLAS participants fulfill the modified New York criteria for ankylosing spondylitis (included since 2004) and/or the ASAS classification criteria for axial spondyloarthritis (included since 2009). Follow-up takes place at regular intervals with data being collected according to a fixed protocol.\r\n\r\nThe 182 patients enrolled in this study were recruited at either of the GLAS clinics (dpt. of Rheumatology and Clinical Immunology, University Medical Centre Groningen & dpt. of Rheumatology, Medical Centre Leeuwarden) during a 6-month period (April through September 2019).\r\n\r\nThis dataset contains a combination of baseline data, data collected during standardized follow-up, and one-off data collected specifically for the linked article and another manuscript which is currently in preparation.\r\n1) Baseline data includes date of birth, sex, year of diagnosis and symptom start, history of peripheral and extra-articular manifestations (EAMs), and HLA-B27 status.\r\n2) Standardized follow-up data includes time since inclusion in GLAS, questionnaire data (BASDAI, ASDAS-CRP, ASQoL, BASFI, several assorted questions), data collected by the clinician (anthropometric data, physical function tests, SJC, TJC, MASES, EAMs), lab values (CRP, ESR), medication use (bDMARDs, NSAIDs, opiates, antidepressants, anticonvulsants), and current classification (ankylosing spondylitis vs. non-radiographic axial spondyloarthritis).\r\n3) One-off data collection includes the Central Sensitization Inventory (CS), Revised Illness Perception Questionnaire (IPQ-R), Pain Catastrophizing Scale (PCS), and the highest completed level of education.\r\n\r\nParticipants in this dataset have been pseudonimized. Only the GLAS PI, researchers and directly involved clinicians have access to the key."},"dsDescriptionDate":{"typeName":"dsDescriptionDate","multiple":false,"typeClass":"primitive","value":"2021-02-11"}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences"]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Stan C Kieskamp, MD, Davy Paap, PT, MSc, Marlies J G Carbo, MD, Freke Wink, MD, Reinhard Bos, MD, PhD, Hendrika Bootsma, MD, PhD, Suzanne Arends, PhD, Anneke Spoorenberg, MD, PhD, Central sensitization, illness perception and obesity should be considered when interpreting disease activity in axial spondyloarthritis, Rheumatology, 2021;keab019."},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"DOI"},"publicationURL":{"typeName":"publicationURL","multiple":false,"typeClass":"primitive","value":"https://doi.org/10.1093/rheumatology/keab019"}}]},{"typeName":"notesText","multiple":false,"typeClass":"primitive","value":"Please note: the actual data are available from the University of Groningen UMCG Institutional Data Access for researchers who meet the criteria for access to confidential data. The local ethics committees of the MCL and the UMCG will maintain the ethical restrictions of the data. The Data Protection Officer of the UMCG will maintain the legal restrictions and appropriate codes of conduct. Permission is required prior to access. Data requests can be sent to Research Data Office University of Groningen: researchdata@rug.nl."},{"typeName":"language","multiple":true,"typeClass":"controlledVocabulary","value":["English"]},{"typeName":"depositor","multiple":false,"typeClass":"primitive","value":"Kieskamp, Stan"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2021-02-11"},{"typeName":"timePeriodCovered","multiple":true,"typeClass":"compound","value":[{"timePeriodCoveredStart":{"typeName":"timePeriodCoveredStart","multiple":false,"typeClass":"primitive","value":"2019-04-01"},"timePeriodCoveredEnd":{"typeName":"timePeriodCoveredEnd","multiple":false,"typeClass":"primitive","value":"2019"}}]},{"typeName":"dateOfCollection","multiple":true,"typeClass":"compound","value":[{"dateOfCollectionStart":{"typeName":"dateOfCollectionStart","multiple":false,"typeClass":"primitive","value":"2019-04-01"},"dateOfCollectionEnd":{"typeName":"dateOfCollectionEnd","multiple":false,"typeClass":"primitive","value":"2019"}}]},{"typeName":"kindOfData","multiple":true,"typeClass":"primitive","value":["Clinical data"]},{"typeName":"software","multiple":true,"typeClass":"compound","value":[{"softwareName":{"typeName":"softwareName","multiple":false,"typeClass":"primitive","value":"SPSS"},"softwareVersion":{"typeName":"softwareVersion","multiple":false,"typeClass":"primitive","value":"23.0.0"}}]}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/RXAROZ"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"1.0"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:b493f016-ebcc-40b4-8c4e-0c9f12d71bfb"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-c1368084-4d3c-48da-a71d-c8b7dbbf1712"}]}},"files":[{"description":"Data_Aggregated_Open_n/means/medians","label":"Dataset impression N-means-medians.docx","restricted":false,"version":2,"datasetVersionId":3444,"dataFile":{"id":48872,"persistentId":"","filename":"Dataset impression N-means-medians.docx","contentType":"application/vnd.openxmlformats-officedocument.wordprocessingml.document","friendlyType":"MS Word","filesize":17751,"description":"Data_Aggregated_Open_n/means/medians","storageIdentifier":"surf://store:1779111d7f0-48710781083b","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"164e8ba4812668ec6d6d421f2e341e54bd3ad3ea"},"tabularData":false,"creationDate":"2021-02-11","publicationDate":"2021-02-14","lastUpdateTime":"2021-02-14T17:59:03Z","fileAccessRequest":false}},{"label":" Dataset impression N-means-medians.pdf","restricted":false,"version":1,"datasetVersionId":3444,"dataFile":{"id":48900,"persistentId":"","filename":" Dataset impression N-means-medians.pdf","contentType":"application/pdf","friendlyType":"Adobe PDF","filesize":172494,"storageIdentifier":"surf://store:177a13bc5db-900942e05351","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"f51023d010841012f247eb5b6316b7cfda30bc77"},"tabularData":false,"creationDate":"2021-02-14","publicationDate":"2021-02-14","lastUpdateTime":"2021-02-14T17:59:03Z","fileAccessRequest":false}}]}}}