{"status":"OK","data":{"id":419397,"identifier":"PDJZXH","persistentUrl":"https://doi.org/10.34894/PDJZXH","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2024-04-22","storageIdentifier":"surf://10.34894/PDJZXH","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":10000,"datasetType":"dataset","locks":[],"latestVersion":{"id":27566,"datasetId":419397,"datasetPersistentId":"doi:10.34894/PDJZXH","datasetType":"dataset","storageIdentifier":"surf://10.34894/PDJZXH","versionNumber":1,"internalVersionNumber":11,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2024-04-22T11:48:20Z","releaseTime":"2024-04-22T11:48:20Z","createTime":"2024-04-17T12:23:45Z","publicationDate":"2024-04-22","citationDate":"2024-04-22","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":10000,"termsOfUse":"The standard Data Transfer Agreement (DTA) used at the Erasmus MC must be signed without adjustments. This DTA template has been set up in conjunction with legal advisors of all Dutch academic hospitals and serves to facilitate and regulate the transfer of/access to personal data that were previously collected by a Dutch University hospital (“Provider”) from patients, participants and/or volunteers for the purpose of scientific research, by an external not-for-profit party (“Recipient”).\nData Transfer Agreement: https://elsi.health-ri.nl/sites/elsi/files/2020-07/20.30815%20OenO%20Template%20-%20Data%20Sharing%20Agreement.pdf","confidentialityDeclaration":"No","specialPermissions":"Access to the data can be requested through contacting the owner of the dataset. A Data Transfer Agreement (DTA) in line with GDPR regulations and/or a Collaboration Agreement should be signed before data is shared. Only data requests in line with the Terms of Use will be taken into consideration.","restrictions":"See Data Transfer Agreement","citationRequirements":"See Data Transfer Agreement","conditions":"To access and use the dataset please read the Terms of Use and the Terms of Access","disclaimer":"See Data Transfer Agreement","termsOfAccess":"The data is not available for download directly via DataverseNL. Data is available on request by contacting the owner of the dataset. ","availabilityStatus":"The data is not available for download directly via DataverseNL but is available on request if the request is compliant with the Terms of Access.","contactForAccess":"Contact dataset owner","fileAccessRequest":false,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Joshua M. Bonsel"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Erasmus MC"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-9143-5506"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Charles M.M. Peeters"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"UMCG, Isala"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-6292-6202"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Max Reijman"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Erasmus MC"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-6316-9629"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Joost P.H.J. Rutges"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Erasmus MC"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-9452-415X"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Diederik H.R. Kempen"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"OLVG, Amsterdam UMC"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-6840-4851"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Jan A.N. Verhaar"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Erasmus MC"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0003-3016-9600"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Adriaan K. Mostert"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Isala"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Christopher Faber"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"UMCG"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Gouke J. Bonsel"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"EuroQol Research Foundation"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-8364-1086"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Bonsel, Joshua"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"erasmusmc.nl"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"This dataset includes patient and clinical characteristics, and questionnaire responses of n=107 patients whom participated in the study: \"A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis\". Patients were treated with a brace for their scoliosis during this study.\n\nPatient characteristics include self-reported characteristics including age, sex, education,  BMI.\nClinical characteristics include cobb angle at diagnosis, at initiation of bracing, at inclusion in this study, and Lenke classification.\nQuestionnaires include a first measurement of the EQ-5D-5L, EQ-5D-Y-5L, the corresponding Visual Analogue Scales, the SRS-22r (scoliosis-specific questionnaire). A second measurement of these questionnaires was obtained at least 7-14 days after completions of the first; approximately 75% of patients responded to the second measurement."},"dsDescriptionDate":{"typeName":"dsDescriptionDate","multiple":false,"typeClass":"primitive","value":"2024"}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"EQ-5D"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Patient-reported Outcome Measure"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Scoliosis"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Adolescents"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Orthopedic Surgery"}}]},{"typeName":"topicClassification","multiple":true,"typeClass":"compound","value":[{"topicClassValue":{"typeName":"topicClassValue","multiple":false,"typeClass":"primitive","value":"Psychometrics"}}]},{"typeName":"notesText","multiple":false,"typeClass":"primitive","value":"The data are sensitive since they involve personal information of patients. There are restrictions on use by commercial parties and on sharing openly, based on (inter)national laws and regulations and written informed consent. Therefore these data (and additional clinical data) are only available upon signing a Data Transfer Agreement (see Terms of Access)."},{"typeName":"language","multiple":true,"typeClass":"controlledVocabulary","value":["Dutch"]},{"typeName":"productionPlace","multiple":true,"typeClass":"primitive","value":["The Netherlands"]},{"typeName":"depositor","multiple":false,"typeClass":"primitive","value":"Joshua M. Bonsel"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2024-04-17"},{"typeName":"timePeriodCovered","multiple":true,"typeClass":"compound","value":[{"timePeriodCoveredStart":{"typeName":"timePeriodCoveredStart","multiple":false,"typeClass":"primitive","value":"2022-01-03"},"timePeriodCoveredEnd":{"typeName":"timePeriodCoveredEnd","multiple":false,"typeClass":"primitive","value":"2023-01-01"}}]},{"typeName":"kindOfData","multiple":true,"typeClass":"primitive","value":["Survey data"]}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/PDJZXH"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"1.0"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:a695d9b6-75a6-4a26-9a98-a165dce9aaa4"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-6d60fa95-e535-44f0-9d72-e5403f8c1353"}]}},"files":[]}}}