{"status":"OK","data":{"id":192761,"identifier":"OZOYUA","persistentUrl":"https://doi.org/10.34894/OZOYUA","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2021-10-19","storageIdentifier":"surf://10.34894/OZOYUA","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9999,"datasetType":"dataset","locks":[],"latestVersion":{"id":25224,"datasetId":192761,"datasetPersistentId":"doi:10.34894/OZOYUA","datasetType":"dataset","storageIdentifier":"surf://10.34894/OZOYUA","versionNumber":1,"internalVersionNumber":6,"versionMinorNumber":1,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2023-07-20T07:27:49Z","releaseTime":"2023-07-20T07:27:49Z","createTime":"2023-07-20T07:25:46Z","publicationDate":"2021-10-19","citationDate":"2021-10-19","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9999,"termsOfUse":"Our data, or part of the data,  has been set to restrictive because the data is pseudonymous and therefore subject to the EU GDPR privacy regulations. \nAccording to our policy, the researcher who deposited the data will be informed about the access request. The depositor of the data might contact the requester for further consultation about the (re)use of the data. If the researcher decides to make the data available an agreement needs to be signed. \nIf this dataset also contains unrestricted data, a 'cc-zero public domain dedication' applies to these unrestricted data.\n","fileAccessRequest":true,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Impaired self-awareness and denial of disability in a community sample of people with traumatic brain injury"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Terneusen, Anneke"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-5819-7932"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Winkens, Ieke"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-5576-808X"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Smeets, Sanne"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Department of Psychiatry and Neuropsychology, MHeNS School for Mental Health and Neuroscience, Maastricht University"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Prigatano, George"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Department of Clinical Neuropsychology, Barrow Neurological Institute, Phoenix, AZ, USA"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-8508-4404"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Porcerelli, John"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Department of Family Medicine and Public Health Services, Wayne State University School of Medicine, Detroit, MI, USA"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-8527-2838"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Kamoo, Ray"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Private Practice, Bingham Farms, MI, USA"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Van Heugten, Caroline"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0003-4272-7315"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Ponds, Rudolf"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Limburg Brain Injury Center, Maastricht University, Maastricht, the Netherlands; cDepartment of Psychiatry and Neuropsychology, MHeNS School for Mental Health and Neuroscience, Maastricht University, Maastricht, the Netherlands"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-9748-4659"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Winkens, Ieke"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"}},{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"faculty data manager FPN"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"Purpose: To examine the nature and severity of impaired self-awareness (ISA) and denial of disability (DD) in a community-dwelling traumatic brain injury (TBI) population. Additionally, to investigate reliability, internal consistency, and feasibility of the Clinician’s Rating Scale for evaluating Impaired Self- Awareness and Denial of Disability after brain injury (CRS-ISA-DD).\nMaterials and methods: ISA and DD were studied using the CRS-ISA-DD in a cross-sectional study with 78 TBI patients (3.1 years post-injury).\nResults: 42% of individuals approached consented to participate in this study. Most participants showed one or more symptoms of ISA and DD, but severity scores were in the lower range (ISA: 13.2 ± 16.2; DD: 9.4 ± 10.7). The CRS-ISA-DD takes <10 min to complete, has excellent inter-rater reliability (ISA: ICC(2,1) ¼ 0.928; DD: ICC(2,1) ¼ 0.835), and acceptable-good internal consistency (ISA: a¼0.819; DD: a¼0.645). ISA severity correlated with neuropsychological test scores (rs ¼ _0.30 to _0.47) and injury severity. DD severity correlated with anxiety (rs ¼ _0.22) but not with avoidance coping or defense mechanisms.\nConclusions: Low levels of ISA and DD occurred in this sample of TBI patients. The CRS-ISA-DD is a reliable and feasible instrument. We recommend using it as a diagnostic tool to differentiate between ISA and DD once self-awareness problems have been identified."}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Social Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"self-awareness"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"denial of disability"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"community-dwelling traumatic brain injury"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"neuropsychological assessment"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"rehabilitation"}}]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"https://doi.org/10.1080/09638288.2021.1970247"},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"10.1080/09638288.2021.1970247"},"publicationURL":{"typeName":"publicationURL","multiple":false,"typeClass":"primitive","value":"https://doi.org/10.1080/09638288.2021.1970247"}}]},{"typeName":"depositor","multiple":false,"typeClass":"primitive","value":"Faculty of Psychology and Neuroscience - Maastricht University"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2021-10-14"},{"typeName":"kindOfData","multiple":true,"typeClass":"primitive","value":["survey data, medical examination data"]}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/OZOYUA"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"1.1"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:f8a98fc3-6411-4061-9176-7ca6a0dbba1f"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-1f66eb7b-7b1b-4b7c-b039-d811a8281ce0"}]}},"files":[{"label":"Data_Prigatano_vervolg_raw.sav","restricted":true,"version":1,"datasetVersionId":25224,"dataFile":{"id":192762,"persistentId":"","filename":"Data_Prigatano_vervolg_raw.sav","contentType":"application/x-spss-sav","friendlyType":"SPSS Binary","filesize":209593,"storageIdentifier":"surf://store:17c7dba788f-24cc767585e2","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"87a65cd38d31e66e896231c2f442e553b8238bbc"},"tabularData":false,"creationDate":"2021-10-14","publicationDate":"2021-10-19","lastUpdateTime":"2023-07-20T07:27:49Z","fileAccessRequest":true}}]}}}