{"status":"OK","data":{"id":314863,"identifier":"ODVGUV","persistentUrl":"https://doi.org/10.34894/ODVGUV","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2022-11-16","storageIdentifier":"surf://10.34894/ODVGUV","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9996,"datasetType":"dataset","locks":[],"latestVersion":{"id":24392,"datasetId":314863,"datasetPersistentId":"doi:10.34894/ODVGUV","datasetType":"dataset","storageIdentifier":"surf://10.34894/ODVGUV","versionNumber":1,"internalVersionNumber":16,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2022-11-16T20:21:17Z","releaseTime":"2022-11-16T20:21:17Z","createTime":"2022-10-19T15:19:34Z","publicationDate":"2022-11-16","citationDate":"2022-11-16","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9996,"termsOfUse":"Re-use of data is limited to academic research in visual impairment and Parkinson disease. The data will only be shared with researchers affiliated with universities or independent, non-commercial research institutes. ","specialPermissions":"Permission for re-use can be granted by the ethics board of the Faculty of Behavioral and Social Sciences, University of Groningen only. Contact the ethics board via the contact details of this dataset: dcc@rug.nl.","restrictions":"The combination of some of the variables (in particular age, sex, disease duration) combined with the location where the data was collected can potentially lead to participants being identified. Signing of a Data Sharing Agreement may be part of the procedure for re-use of the data. ","termsOfAccess":"Re-use of data is limited to academic research in visual impairment and Parkinson disease. The data will only be shared with researchers affiliated with universities or independent, non-commercial research institutes. Further details under \"Terms\".","fileAccessRequest":true,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Prevalence and nature of self-reported visual complaints in people with Parkinson’s disease - Outcome of the Screening Visual Complaints questionnaire"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"van der Lijn, I"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-9685-2838"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"de Haan, G.A."},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-3055-3920"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"van der Feen, F.E."},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-8390-693X"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Huizinga, F."},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen, University of Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-9560-2394"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Stellingwerf, C."},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"van Laar, T."},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen, University of Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-5088-480X"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Heutink, J."},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-4811-968X"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Groningen Digital Competence Centre"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"Introduction: Visual complaints can have a vast impact on the quality of life of people with Parkinson’s disease (PD). In clinical practice however, visual complaints often remain undetected. A better understanding of visual complaints is necessary to optimize care for people with PD and visual complaints. This study aims at determining the prevalence of visual complaints experienced by an outpatient cohort of people with PD compared to a control group. In addition, relations between visual complaints and demographic and disease-related variables and objectified ophthalmological conditions are investigated.\nMethods: The Screening Visual Complaints questionnaire (SVCq) screened for 19 visual complaints in a large cohort of people with idiopathic PD (n = 581) and an age-matched control group (n = 583).\nResults: People with PD experienced significantly more complaints than control subjects, even when there was no underlying ophthalmological condition present. In addition, they experienced a greater impact of visual complaints on their daily lives. Complaints that were most common (‘often/always’) were unclear vision (21.7%), difficulty reading (21.6%), trouble focusing (17.1%), blinded by bright light (16.8%),needing more light (16.6%), and reduced contrast (16.1%). Age, disease duration, disease severity, and the amount of antiparkinsonian medication related positively to the prevalence and severity of visual complaints. Most complaints did not differ between the sexes.\nConclusion: Visual complaints are highly prevalent in people with PD. These complaints progress with the disease and can only partially be explained by the presence of ophthalmological conditions. Standardized questioning is advised for timely recognition and treatment of these complaints."},"dsDescriptionDate":{"typeName":"dsDescriptionDate","multiple":false,"typeClass":"primitive","value":"2022"}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences","Social Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Parkinson's Disease"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Vision Disorders"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"SVCq"}}]},{"typeName":"depositor","multiple":false,"typeClass":"primitive","value":"Elsenga, Christina"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2022-10-19"}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/ODVGUV"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"1.0"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:f211278b-e1e6-4594-b31c-b26287c9fdd0"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-453d602a-753e-4742-9249-2993fb9a9363"}]}},"files":[{"label":"Prevalence of visual complaints in PD - SVCq data.xlsx","restricted":true,"version":2,"datasetVersionId":24392,"dataFile":{"id":314864,"persistentId":"","filename":"Prevalence of visual complaints in PD - SVCq data.xlsx","contentType":"application/vnd.openxmlformats-officedocument.spreadsheetml.sheet","friendlyType":"MS Excel Spreadsheet","filesize":153252,"storageIdentifier":"surf://store:183f13cdc12-a0d26e3ab9be","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"c73a65f2460c2bced99dce052aca7acae5f6acf6"},"tabularData":false,"creationDate":"2022-10-19","publicationDate":"2022-11-16","lastUpdateTime":"2022-11-16T20:21:17Z","fileAccessRequest":true}},{"label":"S1_TableOphthalmologicalConditions.pdf","restricted":false,"version":1,"datasetVersionId":24392,"dataFile":{"id":320113,"persistentId":"","filename":"S1_TableOphthalmologicalConditions.pdf","contentType":"application/pdf","friendlyType":"Adobe PDF","filesize":526649,"storageIdentifier":"surf://store:1847fce8327-bdd47a9ce3da","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"ebf25c126648cb6281c7fc290f38304b4144e69b"},"tabularData":false,"creationDate":"2022-11-16","publicationDate":"2022-11-16","lastUpdateTime":"2022-11-16T20:21:17Z","fileAccessRequest":true}},{"label":"S2_SVCqDutch.pdf","restricted":false,"version":1,"datasetVersionId":24392,"dataFile":{"id":320115,"persistentId":"","filename":"S2_SVCqDutch.pdf","contentType":"application/pdf","friendlyType":"Adobe PDF","filesize":390211,"storageIdentifier":"surf://store:1847fce83b6-3413b6dd2a96","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"03bd2c65050287fcc5b63cb2cbf49f31be8e6d0b"},"tabularData":false,"creationDate":"2022-11-16","publicationDate":"2022-11-16","lastUpdateTime":"2022-11-16T20:21:17Z","fileAccessRequest":true}},{"label":"S3_SVCqEnglish.pdf","restricted":false,"version":1,"datasetVersionId":24392,"dataFile":{"id":320114,"persistentId":"","filename":"S3_SVCqEnglish.pdf","contentType":"application/pdf","friendlyType":"Adobe PDF","filesize":300150,"storageIdentifier":"surf://store:1847fce842c-e6b604265b06","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"649edcd147a91fc01a60c24f642ec459a759a86c"},"tabularData":false,"creationDate":"2022-11-16","publicationDate":"2022-11-16","lastUpdateTime":"2022-11-16T20:21:17Z","fileAccessRequest":true}}]}}}