{"status":"OK","data":{"id":513196,"identifier":"N58QUZ","persistentUrl":"https://doi.org/10.34894/N58QUZ","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2025-08-27","storageIdentifier":"surf://10.34894/N58QUZ","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9996,"datasetType":"dataset","locks":[],"latestVersion":{"id":31531,"datasetId":513196,"datasetPersistentId":"doi:10.34894/N58QUZ","datasetType":"dataset","storageIdentifier":"surf://10.34894/N58QUZ","versionNumber":1,"internalVersionNumber":9,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2025-08-27T12:59:32Z","releaseTime":"2025-08-27T12:59:32Z","createTime":"2025-08-27T08:19:05Z","publicationDate":"2025-08-27","citationDate":"2025-08-27","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9996,"termsOfUse":"See <a href=\"https://assets-eu-01.kc-usercontent.com/546dd520-97db-01b7-154d-79bb6d950a2d/92fcc825-772f-4430-8ca3-6d42dac40974/Data_Access_License_UMC_Utrecht.pdf\">UMC Utrecht license</a>.","confidentialityDeclaration":"No confidentiality declaration needed.","specialPermissions":"No special permissions necessary.","restrictions":"No restrictions apply under the condition that the Terms of Use are accepted.","citationRequirements":"We ask researchers to include an acknowledgment on behalf of the UMC Utrecht. If you use this dataset in a publication, please cite the dataset, and include the following in the citation: author; year; dataset title; dataset DOI; datase version; repository.","disclaimer":"It is expressly understood that UMC Utrecht does not make any warranties regarding the data and specifically does not warrant or guarantee that the data will be accurate, be merchantable or useful for any particular purpose. Use of the data is at your own risk. UMC Utrecht cannot and shall not be held liable for any claims or damages by you or any third party, in connection with or as a result of the use of data by you. ","termsOfAccess":"By downloading or otherwise accessing the materials, the downloader represents his/her acceptance of the Terms of Use and the https://assets-eu-01.kc-usercontent.com/546dd520-97db-01b7-154d-79bb6d950a2d/92fcc825-772f-4430-8ca3-6d42dac40974/Data_Access_License_UMC_Utrecht.pdf.","fileAccessRequest":true,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Replication Data for: CVA ketenindicator"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"de Graaf, Joris"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-8036-1508"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Visser-Meily, Anne"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-6444-4733"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Datamanagement Neurosciences"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"}},{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"de Graaf, Joris"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"In this cross-sectional study data were collected in individuals with stroke 3 months after stroke onset. Inclusion took place in 6 Dutch hospitals between September 2017 and September 2018. Individuals who had suffered a stroke and were admitted to one of the stroke units of the six participating hospitals were eligible for inclusion. All individuals with stroke received a letter informing them about this study, after which informed consent was acquired. The EQ-5D-5L, PROMIS-10, mRS, self-reported decrease in health post-stroke and self-reported decrease in activities post-stroke were administered by a stroke nurse or nurse practitioner at the outpatient clinic through a telephone interview 3 months after stroke. The stroke nurses and nurse practitioners were already trained to perform telephone interviews as part of regular follow-up assessments after stroke. Before the start of the study, all stroke nurses and nurse practitioners were provided with the same instructions about the use of the extra questionnaires to screen for the consequences of stroke, including information on possibilities to elucidate certain questions to the patients. An interview took on average 30 minutes. Demographic (sex, age, marital status, residency and level of education) and strokerelated information (type and localization of stroke, severity of stroke, ADL-dependency) were obtained from medical records by the stroke nurse. The Medical Ethics Committee of the University Medical Center Utrecht declared that the study did not need formal approval under Dutch law (2017-441C). All participating hospitals approved the study."}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Stroke"}}]},{"typeName":"topicClassification","multiple":true,"typeClass":"compound","value":[{"topicClassValue":{"typeName":"topicClassValue","multiple":false,"typeClass":"primitive","value":"Patient-reported outcomes"}}]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"- de Graaf JA, Kuijpers M, Visser-Meily J, Kappelle LJ, Post M. Validity of an enhanced EQ-5D-5L measure with an added cognitive dimension in patients with stroke. Clin Rehabil. 2020 Apr;34(4):545-550. doi: 10.1177/0269215520907990. Epub 2020 Feb 19. PMID: 32070131.\n- de Graaf JA, Volkers EJ, Schepers VPM, Visser-Meily JMA, Post MWM. Validity of the Utrecht scale for evaluation of rehabilitation-participation restrictions scale in a hospital-based stroke population 3 months after stroke. Top Stroke Rehabil. 2022 Oct;29(7):516-525. doi: 10.1080/10749357.2021.1956047. Epub 2021 Jul 27. 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