{"status":"OK","data":{"id":412363,"identifier":"DLXOZB","persistentUrl":"https://doi.org/10.34894/DLXOZB","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2024-05-28","storageIdentifier":"surf://10.34894/DLXOZB","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9989,"datasetType":"dataset","locks":["InReview"],"latestVersion":{"id":30034,"datasetId":412363,"datasetPersistentId":"doi:10.34894/DLXOZB","datasetType":"dataset","storageIdentifier":"surf://10.34894/DLXOZB","versionNumber":2,"internalVersionNumber":13,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"DRAFT","deaccessionLink":"","productionDate":"2022-12-01","lastUpdateTime":"2025-04-04T12:18:14Z","releaseTime":"2025-04-04T12:18:14Z","createTime":"2025-01-02T12:59:36Z","publicationDate":"2024-05-28","citationDate":"2024-05-28","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9989,"license":{"name":"CC-BY-4.0","uri":"http://creativecommons.org/licenses/by/4.0","iconUri":"https://i.creativecommons.org/l/by/4.0/88x31.png"},"fileAccessRequest":false,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"PRESCRIP-TEC client-related factors (CRF) for cervical cancer screening"},{"typeName":"subtitle","multiple":false,"typeClass":"primitive","value":"mixed method research into factors contributing to participation in cervical cancer screening"},{"typeName":"alternativeTitle","multiple":true,"typeClass":"primitive","value":["CRF-PRESCRIP-TEC"]},{"typeName":"otherId","multiple":true,"typeClass":"compound","value":[{"otherIdAgency":{"typeName":"otherIdAgency","multiple":false,"typeClass":"primitive","value":"University of Groningen"}}]},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Koot, Jaap"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"https://orcid.org/0000-0002-6933-0302"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"de Zeeuw, Janine"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"https://orcid.org/0000-0002-7979-9366"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"van der Schans, Jurjen"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"https://orcid.org/0000-0001-6170-1191"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Groningen Digital Competence Centre"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"University of Groningen"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"The Prevention and Screening Innovation Project towards Elimination of Cervical Cancer (PRESCRIP-TEC) research project contributes to the evidence-base for the WHO strategy to eliminate cervical cancer as a public health problem. The project implements an innovative approach in cervical cancer screening, including direct treatment and follow-up, for women in resource-poor or hard-to-reach settings, by improving availability, accessibility, acceptability and quality of services. PRESCRIP-TEC focuses on implementation research into secondary prevention of cervical cancer in different settings in four countries over three continents: Bangladesh and India in Asia, Uganda in Africa, and Slovakia in Eastern Europe. The project builds on interventions with promising or proven effectiveness including cost-effectiveness: - hrHPV based screening is cost-effective when adequate coverage is reached. - Self-swab for hrHPV leads to higher uptake of screening compared to sampling by clinicians. - Visual inspection with acetic acid (VIA) is an approved screening method by the WHO and is part of the national cervical cancer prevention programme in Uganda, Bangladesh, India; in India AI to support VIA screening was shown to be effective in detecting VIA positive lesions. The dataset concerns the following research question per target country: Which are the client-related factors for accessibility and acceptability and adherence to the enhanced screening protocol?"},"dsDescriptionDate":{"typeName":"dsDescriptionDate","multiple":false,"typeClass":"primitive","value":"2024-04-03"}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"human papilloma virus infection"},"keywordVocabulary":{"typeName":"keywordVocabulary","multiple":false,"typeClass":"primitive","value":"MeSH"},"keywordVocabularyURI":{"typeName":"keywordVocabularyURI","multiple":false,"typeClass":"primitive","value":"https://www.ncbi.nlm.nih.gov/mesh/68030361"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Uterine cervical neoplasm"},"keywordVocabulary":{"typeName":"keywordVocabulary","multiple":false,"typeClass":"primitive","value":"MeSH"},"keywordVocabularyURI":{"typeName":"keywordVocabularyURI","multiple":false,"typeClass":"primitive","value":"https://www.ncbi.nlm.nih.gov/mesh/68002583"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Uterine cervical dysplasia"},"keywordVocabulary":{"typeName":"keywordVocabulary","multiple":false,"typeClass":"primitive","value":"MeSH"},"keywordVocabularyURI":{"typeName":"keywordVocabularyURI","multiple":false,"typeClass":"primitive","value":"https://www.ncbi.nlm.nih.gov/mesh/68002578"}}]},{"typeName":"topicClassification","multiple":true,"typeClass":"compound","value":[{"topicClassValue":{"typeName":"topicClassValue","multiple":false,"typeClass":"primitive","value":"Genital Neoplasms, Female"},"topicClassVocab":{"typeName":"topicClassVocab","multiple":false,"typeClass":"primitive","value":"MeSH"},"topicClassVocabURI":{"typeName":"topicClassVocabURI","multiple":false,"typeClass":"primitive","value":"https://www.ncbi.nlm.nih.gov/mesh/68005833"}}]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Baseline knowledge on risk factors, symptoms and intended behavior of women and men towards screening and treatment of cervical cancer in rural Uganda: a cross-sectional study\nNakisige, C., de Fouw, M., Nakalembe, M., Orem, J., Atukonyera, D., Musheshe, M., Koot, J., de Zeeuw, J., Beltman, J. & Stekelenburg, J., 11-Apr-2024, In: BMC Cancer. 24, 11 p., 450."},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"10.1186/s12885-024-12223-8"},"publicationURL":{"typeName":"publicationURL","multiple":false,"typeClass":"primitive","value":"https://bmccancer.biomedcentral.com/articles/10.1186/s12885-024-12223-8"}},{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Understanding cervical cancer awareness in hard-to-reach areas of Bangladesh: A cross-sectional study involving women and household decisionmakers\nNazrul, N., de Fouw, M., Beltman, J. J., de Zeeuw, J., Schans, J. V. D., Koot, J., Rasul, K. G., Kulsum, M. U., Ahmed, M. S., Rahman, A., Rahman, A., Islam, K. M., Nessa, A., Campbell, C. & Stekelenburg, J., 2024, In: PLoS ONE. 19, 8, 14 p., e0304396."},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"10.1371/journal.pone.0304396"},"publicationURL":{"typeName":"publicationURL","multiple":false,"typeClass":"primitive","value":"https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0304396"}}]},{"typeName":"notesText","multiple":false,"typeClass":"primitive","value":"The AWACAN survey was conducted in four countries, in Bangladesh, India, Uganda and Slovak Republic in the context of the PRESCRIP-TEC project."},{"typeName":"language","multiple":true,"typeClass":"controlledVocabulary","value":["English"]},{"typeName":"producer","multiple":true,"typeClass":"compound","value":[{"producerName":{"typeName":"producerName","multiple":false,"typeClass":"primitive","value":"Global Health Unit, Department of Health Sciences"},"producerAffiliation":{"typeName":"producerAffiliation","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen"},"producerAbbreviation":{"typeName":"producerAbbreviation","multiple":false,"typeClass":"primitive","value":"UMCG"},"producerURL":{"typeName":"producerURL","multiple":false,"typeClass":"primitive","value":"https://www.umcg.nl"}}]},{"typeName":"productionDate","multiple":false,"typeClass":"primitive","value":"2022-12-01"},{"typeName":"productionPlace","multiple":true,"typeClass":"primitive","value":["Uganda, India, Bangladesh, Slovak Republic"]},{"typeName":"contributor","multiple":true,"typeClass":"compound","value":[{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Project Leader"},"contributorName":{"typeName":"contributorName","multiple":false,"typeClass":"primitive","value":"University Medical Center Groningen, the 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Spain"}},{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Supervisor"},"contributorName":{"typeName":"contributorName","multiple":false,"typeClass":"primitive","value":"Uganda Cancer Institute, Uganda"}},{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Work Package Leader"},"contributorName":{"typeName":"contributorName","multiple":false,"typeClass":"primitive","value":"Manipal Institute of Higher Education, India"}},{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Work Package Leader"},"contributorName":{"typeName":"contributorName","multiple":false,"typeClass":"primitive","value":"Trnava University, Slovak Republic"}},{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Data 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H2020"},"grantNumberValue":{"typeName":"grantNumberValue","multiple":false,"typeClass":"primitive","value":"964270"}},{"grantNumberAgency":{"typeName":"grantNumberAgency","multiple":false,"typeClass":"primitive","value":"Department of Bio Technical Research, Ministry of Science and Technology, India"},"grantNumberValue":{"typeName":"grantNumberValue","multiple":false,"typeClass":"primitive","value":"https://dbtindia.gov.in"}}]},{"typeName":"distributor","multiple":true,"typeClass":"compound","value":[{"distributorName":{"typeName":"distributorName","multiple":false,"typeClass":"primitive","value":"DataverseNL 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Christina"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2024-03-28"},{"typeName":"timePeriodCovered","multiple":true,"typeClass":"compound","value":[{"timePeriodCoveredStart":{"typeName":"timePeriodCoveredStart","multiple":false,"typeClass":"primitive","value":"2021-02-01"},"timePeriodCoveredEnd":{"typeName":"timePeriodCoveredEnd","multiple":false,"typeClass":"primitive","value":"2024-01-31"}}]},{"typeName":"dateOfCollection","multiple":true,"typeClass":"compound","value":[{"dateOfCollectionStart":{"typeName":"dateOfCollectionStart","multiple":false,"typeClass":"primitive","value":"2021-07-01"},"dateOfCollectionEnd":{"typeName":"dateOfCollectionEnd","multiple":false,"typeClass":"primitive","value":"2024-03-31"}}]},{"typeName":"kindOfData","multiple":true,"typeClass":"primitive","value":["Survey data","Electronic medical records","Clinical data"]},{"typeName":"series","multiple":true,"typeClass":"compound","value":[{"seriesName":{"typeName":"seriesName","multiple":false,"typeClass":"primitive","value":"AWACAN surveys"},"seriesInformation":{"typeName":"seriesInformation","multiple":false,"typeClass":"primitive","value":"The African Women Awareness of Cancer (AWACAN) questionnaire for measuring women’s awareness of breast and cervical cancer (Moodley, 2020) was adapted for use within this study. The PRESCRIP-TEC research team selected the questions solely addressing cervical cancer awareness from the AWACAN survey and developed a AWACAN survey suitable for decision-makers by modifying the selected AWACAN questions. For female respondents, the AWACAN instrument included five socio-demographic questions and five questions on the history concerning cervical cancer screening and treatment and one question on household decision-making. For both females and household-decision makers the adapted survey questionnaire included a total of 53 questions. The tool measures cervical cancer awareness in the following domains: risk factors, symptoms, lay beliefs, confidence in appraisal, help-seeking behaviours, and barriers to health care. The questionnaire is a mix of open, closed and multiple-choice questions. Questions about risk factors are only asked to respondents if they indicate to have heard about cervical cancer. Knowledge scores of risk factors and symptoms were are calculated by assigning 1 point to each \"Yes\" response and a 0 to \"No\" response. The cumulative score for knowledge of correct risk factors ranges from 0 to 11 and the cumulative score for knowledge of all symptoms ranges from 0 to 12. The AWACAN tool has shown to be reliable and valid for use in Sub-Saharan Africa (Moodley, 2019) and to our knowledge the instrument has not been used previously in Bangladesh, India and Slovak Republic."}}]},{"typeName":"dataSources","multiple":true,"typeClass":"primitive","value":["A household survey was conducted prior to the start of the implementation of the hrHPV self-testing in the selected project areas in Uganda, Bangladesh, India and Slovak Republic. In Uganda, the selected subcounties of Kakumiro were Mpasaana, Kitaihuka and Katikara while for Kagadi district the targeted subcounties were Mpeefu, Rugashali and Kyaterekera. In Bangladesh six study areas across five implementation districts were selected: Kurigram, Gaibandha, Bogura, and Sirajganj in the North, and two areas in the southern district of Satkhira. Across India, seven centres were selected for the baseline study,. iIncluding rRural areas for Manipal Aacademy of Hhigher Eeducation (Udupi), Sri Dharmasthala Majunatheshwara college, Chittaranjan National Cancer Institute- Kolkata,. uUrban slums for Tata Mmemorial Centre hospital- Mumbai and Tata Mmedical Ccentere- Kolkata. Hilly rural areas in Sikkim by Sikkim Manipal University and sex workers at St. John’s Medical Centere in Bangalore. In Slovak Republic, the survey was conducted in three regions in eastern Slovak Republic (Sabinov, Prešov, Vranov nad Topľou). In Sabinov, 6 locations were selected, in Prešov, 9 locations, and in Vranov nad Topľou 11 locations."]},{"typeName":"characteristicOfSources","multiple":false,"typeClass":"primitive","value":"Eligible women for the study were women who were 1) living in the study areas and based on their age eligible for cervical cancer screening according to national guidelines, 2) not pregnant, 3) not screened in the previous period whether it was defined based on the national screening policy, and 4) having the cognitive abilities to understand and answer to the questions and give informed consent. Convenience and random sampling were used for selection of respondents and different steps for recruitment were undertaken in each country. In Uganda convenience sampling was applied and eligible women were invited for participation. In Bangladesh sampling at household level was done. Households in the study areas were included for participation if females, husbands and mothers in law from wanted to participate. First convenience sampling was applied and thereafter random sampling was followed. In India, consecutive sampling was applied to approach eligible women and decision makers across various centerscentres. Decision makers were interviewed from the same household when they were considered by the women as being a decision maker. Male decision makers were either husband, son, father or father-in-law and female decision makers were mother or mother-in-law. In Slovak Republic the snowball sampling method was applied to approach eligible women from marginalised Roma communities. Partners or relatives of participating women were approached for participation as well."}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/DLXOZB"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"2.0"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:7562f3e1-7def-4f0b-83d3-e9037a1e6671"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-1795cbfe-51db-4a95-98b0-be69e29c95d8"}]}},"files":[{"description":"anonymised data of awaken survey","label":"AWACAN_BASELINE_DATA_12_DEC,2022_1_revised.csv","restricted":false,"version":1,"datasetVersionId":30034,"dataFile":{"id":422801,"persistentId":"","filename":"AWACAN_BASELINE_DATA_12_DEC,2022_1_revised.csv","contentType":"text/csv","friendlyType":"Comma Separated Values","filesize":769426,"description":"anonymised data of awaken survey","storageIdentifier":"surf://store:18f9f872ce5-cfe6567fd45b","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"b32341271bfd02ad0cd001bb64c7e30ff1ade34a"},"tabularData":false,"creationDate":"2024-05-22","publicationDate":"2024-05-28","lastUpdateTime":"2025-04-04T12:18:14Z","fileAccessRequest":false}},{"description":"Database PRESCRIP-TEC Bangladesh overview of project activities","label":"Bangladesh EMR_16.03.25.xls","restricted":false,"version":1,"datasetVersionId":30034,"dataFile":{"id":478471,"persistentId":"","filename":"Bangladesh EMR_16.03.25.xls","contentType":"application/vnd.ms-excel","friendlyType":"MS Excel Spreadsheet","filesize":7132160,"description":"Database PRESCRIP-TEC Bangladesh overview of project activities","storageIdentifier":"surf://store:19600324a9f-d4454f740768","rootDataFileId":478471,"checksum":{"type":"SHA-1","value":"1fb64fc868adc3847db0bd2c0ad1ac16d18743cc"},"tabularData":false,"creationDate":"2025-04-04","publicationDate":"2025-04-04","lastUpdateTime":"2025-04-04T12:18:14Z","fileAccessRequest":false}},{"description":"Codebook PRESCRIP-TEC Bangladesh Overview of project activities","label":"code book revised.xlsx","restricted":false,"version":1,"datasetVersionId":30034,"dataFile":{"id":478472,"persistentId":"","filename":"code book revised.xlsx","contentType":"application/vnd.openxmlformats-officedocument.spreadsheetml.sheet","friendlyType":"MS Excel Spreadsheet","filesize":18850,"description":"Codebook PRESCRIP-TEC Bangladesh Overview of project activities","storageIdentifier":"surf://store:19600338199-25799efc29ec","rootDataFileId":478472,"checksum":{"type":"SHA-1","value":"0b8cf0a69f245769f26a2d4bfc123340a6c50cc4"},"tabularData":false,"creationDate":"2025-04-04","publicationDate":"2025-04-04","lastUpdateTime":"2025-04-04T12:18:14Z","fileAccessRequest":false}},{"description":"Codebook electronic medical records Bangladesh","label":"EMR_Code-Book_PRESCRIP-TEC_BD18_02_2024.csv","restricted":false,"version":1,"datasetVersionId":30034,"dataFile":{"id":465507,"persistentId":"","filename":"EMR_Code-Book_PRESCRIP-TEC_BD18_02_2024.csv","contentType":"text/csv","friendlyType":"Comma Separated Values","filesize":13055,"description":"Codebook electronic medical records Bangladesh","storageIdentifier":"surf://store:19427193346-9627a3798d24","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"e580604591b89d263dee26c0c6c20ff2968f9079"},"tabularData":false,"creationDate":"2025-01-02","publicationDate":"2025-04-04","lastUpdateTime":"2025-04-04T12:18:14Z","fileAccessRequest":false}},{"description":"Electronic Medical Records clients PRESCRIP-TEC project Bangladesh","label":"EMR_PRESCRIP-TEC_BD_18_02_2024.csv","restricted":false,"version":1,"datasetVersionId":30034,"dataFile":{"id":465508,"persistentId":"","filename":"EMR_PRESCRIP-TEC_BD_18_02_2024.csv","contentType":"text/csv","friendlyType":"Comma Separated Values","filesize":3040208,"description":"Electronic Medical Records clients PRESCRIP-TEC project Bangladesh","storageIdentifier":"surf://store:194271a8568-6f2d2bb218d1","rootDataFileId":-1,"checksum":{"type":"SHA-1","value":"7254765a6f1d0c5be692ba543610fb7acebfd2e7"},"tabularData":false,"creationDate":"2025-01-02","publicationDate":"2025-04-04","lastUpdateTime":"2025-04-04T12:18:14Z","fileAccessRequest":false}},{"description":"Nazrul N, de Fouw M, Beltman JJ, de Zeeuw J, Schans Jvd, et al. 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