{"status":"OK","data":{"id":317861,"identifier":"DIWI5H","persistentUrl":"https://doi.org/10.34894/DIWI5H","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2022-11-22","storageIdentifier":"surf://10.34894/DIWI5H","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":10000,"datasetType":"dataset","locks":[],"latestVersion":{"id":24437,"datasetId":317861,"datasetPersistentId":"doi:10.34894/DIWI5H","datasetType":"dataset","storageIdentifier":"surf://10.34894/DIWI5H","versionNumber":1,"internalVersionNumber":14,"versionMinorNumber":0,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2022-11-22T20:03:00Z","releaseTime":"2022-11-22T20:03:00Z","createTime":"2022-11-07T17:35:41Z","publicationDate":"2022-11-22","citationDate":"2022-11-22","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":10000,"license":{"name":"CC0-1.0","uri":"http://creativecommons.org/publicdomain/zero/1.0","iconUri":"https://licensebuttons.net/p/zero/1.0/88x31.png","rightsIdentifier":"CC0-1.0","rightsIdentifierScheme":"SPDX","schemeUri":"https://spdx.org/licenses/","languageCode":"en"},"fileAccessRequest":false,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Juliët Beuken - PhD project data for study 2"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Juliët Beuken"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0002-5431-9418"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Shedata, S"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"Maastricht University"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"<B>Study Title</B><BR><BR>\nOut of sight, out of mind? A qualitative study of patients' perspectives on cross-border healthcare in a European border region.<BR><BR>\n<B>Study Description</B><BR><BR>\nThe main research question of this study was: ‘What are the perspectives of patients who have experienced cross-border healthcare and, more specifically, handover in a European border region?’<BR><BR>\nWe conducted eight interviews with nine people. One interview also included the patient’s relative. All interviews lasted about one hour. During the first interview, we noticed that it would be meaningful to have an observer who could ask clarifying questions. Therefore, from the second interview onwards, another research team member (MB or DV) was also present who had an observing role. JB was the main interviewer who introduced the topic and asked questions in each phase. Interviews were held in English or Dutch, whichever language the patient preferred. Two participants were interviewed in a language that was not their native tongue. All interviews were recorded with an audio recorder. All interviews were transcribed verbatim by the researchers (JB or MB). After that, we sent the transcripts to the participants for a member check.<BR><BR>\nThe main conclusion was that challenges of cross-border healthcare for patients, albeit no novelty in healthcare, seem to be amplified by cross-border barriers, such as system, language, and cultural differences. To empower patients to be involved in their own healthcare process, these issues should become a topic of conversation between patients and healthcare professionals.<BR><BR>\n<B>Description of Data</B><BR><BR>\nType:\t\tVerbatim transcribed narrative interviews. <BR><BR>\nParticipant:\tPatients in cross-border care (N=9.) <BR><BR>\nLanguage:\tEnglish and Dutch."}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Social Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Cross-border healthcare; European healthcare; European Union; Needs Analysis; Patient perspective; Patient empowerment; Qualitative research; Interviews; Storytelling;"}}]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Beuken JA, Bouwmans MEJ, Verstegen DML, Dolmans DHJM. Out of sight, out of mind? A qualitative study of patients' perspectives on cross-border healthcare in a European border region. Patient Educ Couns. 2021 Oct;104(10):2559-2564. doi: 10.1016/j.pec.2021.03.004. Epub 2021 Mar 9. PMID: 33726985."}}]},{"typeName":"notesText","multiple":false,"typeClass":"primitive","value":"To protect the privacy of the participants in this study, data (interview recordings and transcripts) are not available. Questions about the study can be directed to Juliët Beuken  (j.beuken@maastrichtuniversity.nl)."},{"typeName":"depositor","multiple":false,"typeClass":"primitive","value":"Shedata, S"},{"typeName":"dateOfDeposit","multiple":false,"typeClass":"primitive","value":"2022-11-07"}]},"dansDataVaultMetadata":{"displayName":"Data Vault Metadata","name":"dansDataVaultMetadata","fields":[{"typeName":"dansDataversePid","multiple":false,"typeClass":"primitive","value":"doi:10.34894/DIWI5H"},{"typeName":"dansDataversePidVersion","multiple":false,"typeClass":"primitive","value":"1.0"},{"typeName":"dansBagId","multiple":false,"typeClass":"primitive","value":"urn:uuid:df8e4fa2-f656-406e-9e1e-b84aa3fc5700"},{"typeName":"dansNbn","multiple":false,"typeClass":"primitive","value":"urn:nbn:nl:ui:13-be52768d-1517-4e32-bbd9-33dfdec62622"}]}},"files":[]}}}