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than one year. A narrative approach was used to explore participants’ lived experiences, allowing space for meaning-making. Data were thematically analysed. \nResults: Three main themes emerged from the interviews: 1) the daily experience of living with prolonged incurable cancer, marked by ongoing uncertainty and evolving challenges; 2) social and personal impact; and 3) coping strategies and meaning-making. While attempting to (re)integrate into their everyday environments and routines, participants reported unmet needs for psychosocial support and struggled with a lack of understanding from others. Navigating these circumstances required considerable energy, which was often limited. \nConclusion: People living with prolonged incurable cancer experience enormous disruptions to their well-being and face unique psychosocial challenges. They seek recognition and understanding and express a need for healthcare professionals to better address their ongoing support needs in facing a future filled with uncertainty."}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"prolonged incurable cancer"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"long-term cancer survival"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"patient perspective"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"patients’ experiences"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"psychosocial oncology"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"uncertainty"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"loneliness"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"cancer patient"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"citizen science"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"qualitative research"}}]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationRelationType":{"typeName":"publicationRelationType","multiple":false,"typeClass":"controlledVocabulary","value":"IsSupplementedBy"},"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Monpellier, M., Nierop-van Baalen, C.A., Hermans, D., Brom, L., Raijmakers, N.J.H., Greidanus, M.A., Miedema, H.S, Groot, M.M. 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Navigating a life of uncertainty: A qualitative study on the experiences and needs of people living with prolonged Incurable cancer [Manuscript submitted for publication]"}}]},{"typeName":"contributor","multiple":true,"typeClass":"compound","value":[{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Project Member"},"contributorName":{"typeName":"contributorName","multiple":false,"typeClass":"primitive","value":"Integraal Kankercentrum Nederland"}},{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Project Member"},"contributorName":{"typeName":"contributorName","multiple":false,"typeClass":"primitive","value":"Nederlandse Federatie Kankerpatiëntenorganisaties"}},{"contributorType":{"typeName":"contributorType","multiple":false,"typeClass":"controlledVocabulary","value":"Project 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