{"status":"OK","data":{"id":218406,"identifier":"38TWWA","persistentUrl":"https://doi.org/10.34894/38TWWA","protocol":"doi","authority":"10.34894","separator":"/","publisher":"DataverseNL","publicationDate":"2022-01-31","storageIdentifier":"surf://10.34894/38TWWA","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9997,"datasetType":"dataset","locks":[],"latestVersion":{"id":19613,"datasetId":218406,"datasetPersistentId":"doi:10.34894/38TWWA","datasetType":"dataset","storageIdentifier":"surf://10.34894/38TWWA","versionNumber":1,"internalVersionNumber":6,"versionMinorNumber":1,"versionState":"RELEASED","latestVersionPublishingState":"RELEASED","deaccessionLink":"","lastUpdateTime":"2022-04-11T13:23:45Z","releaseTime":"2022-04-11T13:23:45Z","createTime":"2022-04-11T13:23:18Z","publicationDate":"2022-01-31","citationDate":"2022-01-31","effectiveDatasetFileCountLimit":10000,"datasetFileUploadsAvailable":9997,"termsOfUse":"The standard Data Sharing Agreement (DSA) of the UMC Utrecht must be signed without adjustments. 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By signing the DSA and/or RCA and accessing the Materials, the recipient represents his/her acceptance of the Terms of Use.","availabilityStatus":"The data is not available for download directly via DataverseNL but is available on request if the request is compliant with the Terms of Access.","contactForAccess":"Please fill out the <a href=\"https://www.umcutrecht.nl/en/data-request-form-umc-utrecht\">request form</a>","fileAccessRequest":true,"metadataBlocks":{"citation":{"displayName":"Citation Metadata","name":"citation","fields":[{"typeName":"title","multiple":false,"typeClass":"primitive","value":"Replication Data for: HOPEVOL, appropriate hospice care in the Netherlands"},{"typeName":"author","multiple":true,"typeClass":"compound","value":[{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Everlien de Graaf"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-8528-4070"}},{"authorName":{"typeName":"authorName","multiple":false,"typeClass":"primitive","value":"Saskia Teunissen"},"authorAffiliation":{"typeName":"authorAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"},"authorIdentifierScheme":{"typeName":"authorIdentifierScheme","multiple":false,"typeClass":"controlledVocabulary","value":"ORCID"},"authorIdentifier":{"typeName":"authorIdentifier","multiple":false,"typeClass":"primitive","value":"0000-0001-8827-461X"}}]},{"typeName":"datasetContact","multiple":true,"typeClass":"compound","value":[{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"data management"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"}},{"datasetContactName":{"typeName":"datasetContactName","multiple":false,"typeClass":"primitive","value":"Everlien de Graaf"},"datasetContactAffiliation":{"typeName":"datasetContactAffiliation","multiple":false,"typeClass":"primitive","value":"UMC Utrecht"}}]},{"typeName":"dsDescription","multiple":true,"typeClass":"compound","value":[{"dsDescriptionValue":{"typeName":"dsDescriptionValue","multiple":false,"typeClass":"primitive","value":"The quantitative and qualitative datasets comprise data from the HOPEVOL study a national study of appropriate hospice care in the Netherlands. \n\nThis study contains multiple datasets\n1)\tHOPEVOL1 and HOPEVOL2study: The raw data from two dataset were merged to one complete set containing data from 803 patients admitted to hospices in the Netherlands in 2017 and 2018. In total 266 variables were collected from all patients.\n2)\tHOPEVOL1 en HOPEVOL2 report The datasets comprises data from 204 patients contributed to an indepth symptom management practices overview, containing information on practices of 14 symptoms and use of three PROMS in total 296 variables\n3)     A data dictionary of all data collected in HOPEVOL1 and HOPEVOL2 in Dutch\n4)\tHOPEVOL_hospice_characteristics: comprises information of structure and process of care of 42 hospices in 149 variables.\n5)\tDignity_caregiver: qualitative data, transcriptions of focusgroups interviews with caregivers working in hospices in the Netherlands discussing dignity and dignity conserving care practices in daily hospice care.\n6)\tDignity_patient: qualitative data: transcriptions of  of interviews with patients exploring the meaning of dignity and dignity conserving care form the patient perspective.\n7)\tDignity_patient_dignity_inventory; contains patient characteristics, PDI outcomes and USD4D outcomes of 99 patients admitted to hospices in the Netherlands in 2021."},"dsDescriptionDate":{"typeName":"dsDescriptionDate","multiple":false,"typeClass":"primitive","value":"2022-01-14"}}]},{"typeName":"subject","multiple":true,"typeClass":"controlledVocabulary","value":["Medicine, Health and Life Sciences"]},{"typeName":"keyword","multiple":true,"typeClass":"compound","value":[{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Palliative Care"},"keywordVocabulary":{"typeName":"keywordVocabulary","multiple":false,"typeClass":"primitive","value":"MeSH"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Hospice Care"},"keywordVocabulary":{"typeName":"keywordVocabulary","multiple":false,"typeClass":"primitive","value":"MeSH"}},{"keywordValue":{"typeName":"keywordValue","multiple":false,"typeClass":"primitive","value":"Palliative Medicine"},"keywordVocabulary":{"typeName":"keywordVocabulary","multiple":false,"typeClass":"primitive","value":"MeSH"}}]},{"typeName":"publication","multiple":true,"typeClass":"compound","value":[{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"van Klinken M, de Graaf E, Bressers R, Koorn R, van der Baan F, Teunissen S. What do Future Hospice Patients Expect of Hospice Care: Expectations of Patients in the Palliative Phase Who Might be in Need of Hospice Care in the Future: A Qualitative Exploration. Am J Hosp Palliat Care. 2020 Jun;37(6):439-447. doi: 10.1177/1049909119893358. Epub 2019 Dec 9. PMID: 31818118; PMCID: PMC7168802."},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"10.1177/1049909119893358"},"publicationURL":{"typeName":"publicationURL","multiple":false,"typeClass":"primitive","value":"https://pubmed.ncbi.nlm.nih.gov/31818118/"}},{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Koorn RM, van Klinken M, de Graaf E, Bressers REGW, Jobse AP, van der Baan F, Teunissen SCCM. Who Are Hospice Patients and What Care Is Provided in Hospices? A Pilot Study. Am J Hosp Palliat Care. 2020 Jun;37(6):448-454. doi: 10.1177/1049909119889004. Epub 2019 Dec 13. PMID: 31835931; PMCID: PMC7168801."},"publicationIDType":{"typeName":"publicationIDType","multiple":false,"typeClass":"controlledVocabulary","value":"doi"},"publicationIDNumber":{"typeName":"publicationIDNumber","multiple":false,"typeClass":"primitive","value":"10.1177/1049909119889004"},"publicationURL":{"typeName":"publicationURL","multiple":false,"typeClass":"primitive","value":"https://pubmed.ncbi.nlm.nih.gov/31835931/"}},{"publicationCitation":{"typeName":"publicationCitation","multiple":false,"typeClass":"primitive","value":"Grant M, de Graaf E, Teunissen S. A systematic review of classifications systems to determine complexity of patient care needs in palliative care. Palliat Med. 2021 Apr;35(4):636-650. doi: 10.1177/0269216321996983. Epub 2021 Mar 12. 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